So! Here's my story of what's been going on for the past month or so. Time kind of has lost meaning here, ya know?
I am very pleased to say that the long, twisting, painful Lyme path I've been on for four years (more?) is starting to have an end that I can actually see. My mini-remissions are longer in length, I can handle the pain much better, and I can anticipate the bad days with far more accuracy. I have my blood drawn every three weeks and my levels that kept going whhhhheeeeee on a rollercoaster have been much more stable. I save my spoons (Spoon Theory people, you with me?) and I've tried very hard not to feel like I'm messing up everyone's life who comes in contact with me. I started therapy and it's difficult, but worth it.
The typical thing is Murphy's Law is apparently a Law that is alive and well and untampered with. When the Lyme and co-infections started to regulate, other things dropped in my lap. My family has a recent history of thyroid cancer and I decided to have my thyroid checked again with a full panel. My thyroid has always been a little wiggy here and there, but then the blood work would come back normal. But when you see people you love get cancer, and your throat has been feeling.... not right for a year or so, I didn't want to ignore it.
I had an ultrasound and I have three small nodes. They are not big enough to biopsy safely and my thyroid is apparently really deep and the parathyroid is attached weirdly (?). But Rick and I were fully expecting, from our first doctor's messages, that we were looking at potential thyroid cancer. And I know that's not nearly the kind of cancer that so many of you have dealt with, but I wasn't exactly prepared. It felt so unfair to see the end of the Lyme road, even if it's still got a few hills on it, only to hit a freaking pot hole with teeth.
But wait! There's more! (And a set of Ginsu knives for 49.99 if you've read this far. Kidding.) I'm waiting to hear back from a cardiologist. There has been a heavy feeling in my chest, like my heart is too big (my thyroid was the right size so that wasn't it) and I already have mycoplasma pneumoniae from the tick, a constant cough, yucko -- so who knows. It could just be the way your body settles when you're in bed as long as I have been. I'm mellllllllting. That sort of thing.
And the last thing (whew!) is I was diagnosed with a type of anemia (out of the blue, what's up with this???) where my hemoglobin is normal but my ferritin serum is extremely low. It's 5, and the norm is between 15-50. Basically, I don't have nearly enough stored iron, so I've been falling asleep just sitting up, passing out, lightheaded, dizzy, bumping into walls I can plainly see but smack into anyway, etc. I've got some pretty bruises!
But really, no problem. This has a protocol! I need three weeks of infusions (once a week for three weeks) and then another blood test, but I can't be seen for my consult until Jan 4th, which really isn't that bad considering the holidays are HERE (and I'm excited because that means long nights of Trivial Pursuit with the family). Then hopefully we can figure out which drug is chelating all the iron and I'll have the energy to get rid of some blubber I've amassed and push even harder up the next few hills of Lyme Road and C'Lyme to full remission.
And that has been my month!